Friday, 20 August 2010

What do you make of this?

I know what I do

Just published, more cerebral palsy research in the medical mode –

Horsman, M , Suto, M., Dudgeon B., Harris, S.R. (2010) Growing older with cerebral palsy: insiders' perspectives, Pediatric Physical Therapy, vol. 22, no 3, pp. 296-303
PURPOSE: Research has shown that adults with cerebral palsy (CP) lose functional abilities earlier than persons who are able-bodied. Because CP is a lifespan disability, developmental therapists should be aware of these changes.
METHODS: We used descriptive phenomenology to understand the unique, lived experiences of adults growing older with CP. Data were gathered through in-depth, semistructured interviews. Open-ended questions asked what it was like to age with CP, how these experiences were understood, how strategies were used to cope with changes, and what are the meanings of these experiences.
RESULTS: A theme, Awareness, Acceptance, and Action, emerged from the data analysis. Participants were aware that their bodies were deteriorating quicker than those of peers who are able-bodied. They developed acceptance that hastened actions toward improving their quality of life.
CONCLUSIONS: These findings provide insights for pediatric therapists who work with children with CP
about what may be important to their clients as they grow older.

What do I make of it?

Medical research has shown what most people with relevant experience and common sense can already tell you (and, one assumes from this context anyway, paediatric therapists do not). Four well-paid people in Canada and the United States have got together to do some more. They have asked disabled people what they think, and find the same. They conclude that disabled people already know about this but, unlike themselves and their fellow-professionals, are getting on with life and finding their own ways to deal with it. No more research of this kind is needed.

Cynical, moi?

1 comment:

  1. yes, yes, wondrous.. and 9 of 10 people surveyed agreed that they were surveyed. The 10th was interrupted by a twitter twitch, and the jury is still out regarding the implications behind the emperor's new clothes. In other news, there is more news; and as one might expect, you just wasted more of your time reading this. Nonetheless, I applaud all of us for our awareness,acceptance, and apples and aardvarks and . . .