Friday, 27 April 2012

NOT 'JUST FOR CEREBRAL PALSY'

CE with 3p25 deletion syndrome

There are still far too many statements (and beliefs) that Conductive Education is only for children with cerebral palsy – or even that it was 'was specifically developed for children with cerebral palsy'. Never mind questions of the arbitrary nature of what constitutes cerebral palsy, there is the more important matter that neither statement is true!
Fortunately, many conductors and centres know better, and act accordingly. As a result, so do many parents too.
Here is an interesting case study*, published in a local newspaper this morning, from England's East Midlands about a girl who has '3p25 deletion', also called 3p- (say it as 'three p minus', or 'three p deletion') syndrome 
When she was three, Catherine and James – a call handler for Derbyshire police at its Ripley headquarters – took Scarlett to the Steps Conductive Education Centre, in Shepshed, Leicestershire, to help her learn how to walk. 
The centre helps youngsters acquire motor skills. After her daughter's time there, Catherine wanted to volunteer and now works part-time for the charity.

She says: 'Doctors were not sure at all whether or not Scarlett would walk so when she started walking before she was four that was really nice. I think she became determined to do so after she learned what she could access by doing so.

'She had a walker but wouldn't go near it at first, though when we left it around for her for a while she began to get used to it, so we could then show her what it did and it went from there. It was slow progress but it was at her pace.'

A nice outcome with locomotion, and what looks like positive opportunity to see what further might be achieved across the board through continuing family conductive upbringing.

Rare Chromosome Disorder Support Group

For a very good guide to 3p- syndrome:


A printed leaflet is also available – free but make a donation to Unique if you wish.

Similar information is also available on many other rare disorders:


Steps

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* Yes, I know that this is actually a newspaper report rather that a technical case study, but it is good reportage and superior to many a professional account that I have read on similar topics.

2 comments:

  1. glad to hear about this as we are doing a small pilot research about the impact of CE for children with Genetic and Undiagnosed developmental conditions - thanks andrew!

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  2. ONe of our programs, wherein we had a part-time conductor, on a six-month contract: we had only about 12 clients, but 20 different diagnoses! Of those, only about 6 were cerebral palsy. And all the families/individuals were happy with Zsuzsi's CE.

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