Wednesday, 28 January 2015

CEREBRAL PALSY REPORT

So it goes

Three Counties Radio is a local BBC station transmitted to the English home counties of Bedfordshire, Hertfordshire and Buckinghamshire. Yesterday listeners heard of a report just published on cerebral palsy:

(timed from 01.23.09 to 01.28.35)
This will remain on line for one month only

Interviewed in this five-minute slot was Ian Sansbury, author of the report, who until the New Year was the Director of Finance and Resources for PACE. The report was commissioned by a group of English CE centres. PACE itself is in Buckinghamshire.

Mr Sansbury outlined familiar issues concerning the lives of families affected by cerebral palsy, but his focus was medical, specifically the matter of obtaining initial diagnosis. He also reiterated the familiar general prevalence of the cerebral palsies.

A local parent, Charlotte … (sorry, Charlotte, I could not catch your surname) was also interviewed. She recounted some of the problems that she had faced, which will be so familiar to parents the world over.

The report has recommended greater awareness of cerebral palsy among family doctors and more training for health personnel.

Despite this report's origins in a group of Conductive Education services, no mention was made of Conductive Education. Nor was there suggestion of what Norman Perrin last September on CE Jottings termed a distinctively conductive view of cerebral palsy:


In this context one might question the relevance of medical diagnosis to the task of getting on immediately to do something practical for the benefit of both children and their families.

To see what the full report makes of Conductive Education (a single paragraph over 37 pages) and how far this report reflects a CE view of cerebral palsy, read it in full at:


By the way...

A recent personal reflection on diagnosis:




1 comment:

  1. CE is actually mentioned in the report on p.26 and is the only non-statutory approach considered on p.35. CE is not synonymous with CP and vice versa. However this document can provide a good spring board for CE if centres choose to use it and see it as highlighting a solution to the problems identified. I personally believe it is the first document we have, which we as practitioners can use to demonstrate how CE can best meet the needs of families. No document is ever perfect, can of course be easily criticised and no doubt improved on BUT all of us, in CE and elsewhere, also have a wider responsibility for the families we work with. Is CE the only solution (I think not) so how can we best support the children's voices both within CE and outside. as a conductor I feel that this report can be used to promote CE as well. Let's now all work together to make that happen rather than see what might have or could have been.

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