Monday, 30 January 2017

NICE GUIDELINE FOR UK

Cerebral palsy

NICE (the National Institute for Health and Care Excellence) has published its first national guideline on cerebral palsy.

Everyone in the UK involved with children and adults under 25 with cerebral palsy, and their families, may wish to have this document. In effect it will indicate and perhaps constrain the understandings and practical services to be found within the NHS:

The guideline’s recommendations include multidisciplinary care; managing feeding and drooling problems; supporting speech, language, and communication; assessing and managing pain, distress, and sleep disturbances; managing other comorbidities, including mental health problems; and transitioning from pediatric to adult services.

https://cerebralpalsynewstoday.com/2017/01/27/nice-publishes-first-cerebral-palsy-guideline-improve-diagnosis-treatment/

Read NICE's full document


'Multidisciplinary care' is strongly advocated (para. 153) –

Ensure that the child or young person with cerebral palsy has access to a local integrated core multidisciplinary team that:
  • is able to meet their individual needs within agreed care pathways
  • can provide the following expertise, as appropriate, through a local network of care:
    • paediatric or adult medicine
    • nursing care
    • physiotherapy
    • occupational therapy
    • speech and language therapy
    • dietetics
    • psychology
  • can enable access to other services within their local or regional network as appropriate, including:
    • paediatric or adult neurodisability, neurology, neurorehabilitation, respiratory, gastroenterology and surgical specialist care
    • orthopaedics
    • orthotics and rehabilitation services
    • social care
    • visual and hearing specialist services
    • teaching support for preschool and school-age children, including portage (home teaching services for preschool children).
Referral to 'voluntary organisations' is suggested for those seeking further information (para 1.18.3)

The word 'learn' occurs frequently, but only in the context of the term 'learning difficulties'.

Readers might like to seek out the some other important words for themselves and consider the implications of what they find:
  • therapy
  • treatment
  • family/families
  • community/communities
  • teach
  • conductive
  • education
There is a lot more in there to look for.

And Conductive Education?

Conductive Educaiom is not mentioned. In this context Conductive Education does not exist
  • at one level this is hardly surprising, as education for children and young adults is not and should not be the concern of health agencies
  • on the other hand, complete omission indicate the limited degree to which the implications of Conductive Education and relevant events of the last thirty or so years have made discernible impact
Note that in August-September last year the draft version of this report was out to consultation with all organisations registered as 'stakeholders'.
Adults next

NICE is currently developing an additional guideline on the management of CP in adults. Its expected publication date is January 2019.

Interesting word, 'management'!

Not just in the UK

NICE in an internationally respected source of authoritative information, its guidelines being widely recognised around the world.

It is worth noting that Carolina Henriques' news report that prompted this posting was published from Dallas, Texas.

References

Henriques, C (2017) UK’s NICE publishes first guideline on cerebral palsy to improve diagnosis, treatment, 27 January

NICE (2017) Cerebral Palsy in under 25s: assessment and management, National Institute for Care and Health Excellence, 25 February
Conductive Education Information

I picked up news of this report from Gill Maguire's library and information blog, a useful source of current awareness in the information-starved world of Conductive Education. Keep your own eye on it:



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